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Social Science People With Disabilities

Unmothering Autism

Ethical Disruptions and Affirming Care

by (author) Patty Douglas

Publisher
UBC Press
Initial publish date
Nov 2024
Category
People with Disabilities, Autism Spectrum Disorders, Motherhood, Children with Special Needs, Marriage & Family
  • Hardback

    ISBN
    9780774869720
    Publish Date
    Nov 2024
    List Price
    $99.00
  • eBook

    ISBN
    9780774869751
    Publish Date
    Nov 2024
    List Price
    $34.95

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Description

As global rates of autism diagnosis rise, dominant cultural representations continue to define autism as a tragic neurological disorder. And mothers – as primary caregivers and advocates – are centrally implicated in the impulse to find both cause and cure. How should we care about autism and autistic people?

 

Unmothering Autism emerged from Patty Douglas’s desire to understand a contradiction: she and her two sons (one autistic) experienced beauty living together, while their public encounters with doctors, school professionals, and agencies were fraught and sometimes violent. In this book, Douglas offers a critical history of popular and biomedical assumptions about autism, expressed through shifting social constructs that blame or valorize maternal care. Throughout, she also intersperses her own insights and shares conversations she has had with other “autism mothers.”

 

Unmothering Autism theorizes an “ethics of disruption,” reorienting us to autism and autistic people as valuable and fundamentally human. It centres the previously marginalized perspectives of mothers and autistic individuals to affirm their knowledge of living well together in, and through, difference.

About the author

Contributor Notes

Patty Douglas is an associate professor of disability studies, the inaugural chair in student success and wellness, and co-director of the Centre for Community Engagement and Social Change in the Faculty of Education at Queen’s University. She leads Re•Storying Autism (www.restoryingautism.com), a multimedia storytelling project located in Canada, the United Kingdom, and Aotearoa (New Zealand), and is a sought-after international speaker. She is also a senior research affiliate at the Re•Vision Centre for Art and Social Justice at the University of Guelph. Patty identifies as neurodivergent and invisibly disabled and is the mother of two neurodivergent sons, one of whom identifies as autistic.