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Health & Fitness Alzheimer's & Dementia

Be With

Letters to a Caregiver

by (author) Mike Barnes

Publisher
Biblioasis
Initial publish date
Sep 2018
Category
Alzheimer's & Dementia
  • Paperback / softback

    ISBN
    9781771962438
    Publish Date
    Sep 2018
    List Price
    $17.95

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Description

SHORTLISTED FOR THE TORONTO BOOK AWARD

 

AS SEEN ON GLOBAL NEWS TV'S THE MORNING SHOW

 

A CBC CANADIAN BOOK TO READ FOR MENTAL HEALTH WEEK

 

Drawing on the author’s seven years of caring for his mother through Alzheimer’s, Be With: Letters to a Caregiver is what its title promises: four dispatches to an anonymous long-term caregiver. In brief passages that cast fresh light on what it means to live with dementia, Barnes shares trials, insights, solace—and, ultimately, inspiration.

Meant to be a companion in waiting rooms, on bus routes, or while a loved one naps, Be With is a dippable source of clarity for harried readers who might only have time for a few lines or paragraphs. Mike Barnes writes with sensitivity and grace about fellowship, responsibility, and joyful relatedness—what it means to simply be with the people that we love.

About the author

Mike Barnes is the author of the novels Catalogue Raisonn? and The Syllabus, the short fiction collections Aquarium -- winner of the 1999 Danuta Gleed Award -- and Contrary Angel, and two poetry collections, Calm Jazz Sea, shortlisted for the Gerald Lampert Memorial award, and a thaw foretold. His stories have appeared twice in Best Canadian Stories, three times in The Journey Prize Anthology, and won the Silver Medal for Fiction at the National Magazine Awards. He was the subject of a feature issue of The New Quarterly (Summer 2001) which included an interview and three new stories. In 2008 he released his first non-fiction title, The Lily Pond: A Memoir of Madness, Memory, Myth and Metamorphosis. Formerly a piano teacher, fishing guide, janitor, steelworker, dishwasher, clock salesman, security guard, English teacher, in recent years he has been working as a private tutor. He lives in Toronto.

Mike Barnes' profile page

Editorial Reviews

Praise for Be With

“Caregiving for loved ones is a topic often left out of contemporary writing. In Be With, Mike Barnes lifts the curtain on his own experiences with dispatches to anonymous caregivers/loved ones living with the fallout of Alzheimers disease. This slim volume is filled with wisdom for the moments when caregivers may need it most—the long periods of uncertainty while waiting. While Be With may be directed to those who need it most, its in-depth look at human connection is relatable to anyone.” —Toronto Book Award Jury Citation

“Timely, lyrical, tough, accurate.” —Margaret Atwood

“Beautiful.” —CHCH-TV

“My heart lodged in my throat and my eyes stayed glassy over the brief duration of Be With: Letters to a Caregiver. It's a lovely, loving, and unflinching work ... He shares knowledge ("The truth is, there's no graceful way to take control of someone's life away from them") and he asks questions ("How much room in your own heart?") any caregiver must consider. He also asserts his primary insight: "But being with in person trumps all else. It's the one way of caring most likely to be right, and the least likely to be regretted.” —Toronto Star

“The particulars of Mary’s dementia give this brief book universal appeal. The author effectively humanizes himself as a man who has made errors, who wishes he had done things differently, and who has his own psychological burdens to bear...A book that tells the reader that you are not alone, whoever you are.” —Kirkus Reviews

“Barnes shares a tender exaltation...with a clear and melodic tenor; there’s poetry in his myriad introspections, and a willingness to put everything on the table, good, bad, and heart-wrenching. This is a powerful book for those who have experienced similar trials, regardless of length of time or severity.” —Publishers Weekly

“In their simplicity and even-handed tone, the letters achieve their author’s difficult aim: they present as a literary Third Man, a friendly, authoritative voice in the dark that will lead its at-the-end-of-their-tether listeners through to the endgame...What really matters, he concludes, is the hardest thing, being there with her. “For every thousand pages describing how living is shattered by this dread disease, there should be at least one page observing how living goes on within it.” Be With has 156 pages of them.” —Literary Review of Canada

“Powerful...the short, digestible letters are written with a realistic understanding of busy, exhausted caregivers' time and energy and stay true to the book's title, emphasizing the deceptively simple need to just "be with" - to witness, see, and accept. Poignant but never heavy-handed, it's a relevant and empathetic book that meets caregivers where they are.” —Open Book

Praise for Mike Barnes

“… fiercely alive, marked by a sharp, unerring eye for detail and a wonderful way with metaphors.” —Toronto Star

“His lucid prose brings to mind Poe’s Gothic horror, Hunter S. Thompson’s strangeness (without the drug-craze), and William Burroughs’ ellipsis (without the disintegration). But it is perhaps closest to Roald Dahl’s intimate exploration of human oddity and use of surprise in Switch Bitch.” Globe and Mail

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